Recent comments in /f/IAmA
AlternativeSign272 OP t1_j8fdr4f wrote
Reply to comment by Lovelyterry in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
No. Doctors at a Children’s Hospital dermatology/allergy wing.
AlternativeSign272 OP t1_j8fdomw wrote
Reply to comment by MakesMyHeadHurt in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
I think just water, but I also have not tried. Watermelon juice triggers it though, and I definitely didn’t find that out by spilling an entire jug of it on me.
AlternativeSign272 OP t1_j8fdkf5 wrote
Reply to comment by grammarpopo in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
Will talk to my docs! Thanks!
AlternativeSign272 OP t1_j8fdj7p wrote
Reply to comment by chrisprice in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
I will talk to my doctors, thank you!
AlternativeSign272 OP t1_j8fdhe7 wrote
Reply to comment by technicolored_dreams in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
It was Pepsid. Just checked. I also do not know why I was prescribed that. I think it’s got something to do with what msnmck is saying.
AlternativeSign272 OP t1_j8fdcpg wrote
Reply to comment by Micksar in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
No clue. Started presenting symptoms when I was around 9-10 I think.
AlternativeSign272 OP t1_j8fdanq wrote
Reply to comment by bse50 in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
No, but I wish I did.
AlternativeSign272 OP t1_j8fd91a wrote
Reply to comment by MusaEnimScale in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
Ooh, I would hope not. I go to a fancy academy highschool, so I would hope there’s no mold! 🫣
AlternativeSign272 OP t1_j8fd31q wrote
Reply to comment by fushifush in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
I can drink it, although I did just read the other Aquagenic AMA from 13yrs ago, and they said their lips got dry. I do tend to have dry lips, so now I’m wondering if that’s got something to do with it.
AlternativeSign272 OP t1_j8fcwwx wrote
Reply to comment by russellvt in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
I went to my local derm, who then referred me to Children’s in Boston. I went there, was formally diagnosed and prescribed over-the-counter antihistamines. Those didn’t work, so I went back! They said, basically, “we don’t know what to do, we’ve never seen this before, if you’re okay with the reactions then just leave it be, watch for trials and new treatments.” (Something along those lines.)
AlternativeSign272 OP t1_j8fcl1i wrote
Reply to comment by RagingAardvark in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
That’s what happened to my mom!
AlternativeSign272 OP t1_j8fcjy2 wrote
Reply to comment by russellvt in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
Doctors told me I was the 51st documented in the US. They also suspect that there may be more that just don’t know, or may be less that have been misdiagnosed (i.e. like it’s actually temperature urticaria)
AlternativeSign272 OP t1_j8fcfbl wrote
Reply to comment by rhubes in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
Oh, dear.. the only one I found was from 13 years ago.
AlternativeSign272 OP t1_j8fcc2f wrote
Reply to comment by Emeryb999 in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
Thanks for this, now I can tell people that my cells are just built different (kidding, kidding.) But really, I appreciate the insight! :O
AlternativeSign272 OP t1_j8fc71r wrote
Reply to comment by Raspberries-Are-Evil in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
I have tried everything. Name it, I’ve tried it. Distilled, town water, pool water, another pool’s water, ocean, lake, rain, sweat… etc.
AlternativeSign272 OP t1_j8fc1n6 wrote
Reply to comment by Kehlii in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
I do react to my own sweat, it makes summer super fun. I did try some meds, but they stopped being effective.
AlternativeSign272 OP t1_j8fbxnb wrote
Reply to comment by Dr_Ukato in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
Haha, my mom and I love that saying!! I get my zebra-ness from my mom, who has a whole lot more interesting conditions than me. Perhaps I should encourage her to do one of these..
[deleted] t1_j8fbpja wrote
Kehlii t1_j8fbk13 wrote
Reply to comment by AlternativeSign272 in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
I know exactly what you mean, having to tell everyone that you have ruled out shampoo and temperature and everything else is so annoying, especially if you visit multiple doctors for it.
Two more questions if you want:
Did you try any treatments or did you just accept it? Do you react to your own sweat?
AlternativeSign272 OP t1_j8fbcia wrote
Reply to I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
Edited with a second photo of me, proving that the first one is me.. hopefully this counts.
RagingAardvark t1_j8f99ix wrote
Reply to comment by russellvt in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
I had a similar reaction to water when I was younger, and we never pursued medical care for it because it was relatively minor, just an annoyance. I'm sure there are many more like me.
conventionalWisdumb t1_j8f97ac wrote
Reply to comment by FerretFarm in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
Thank you. I hope our collective urticarias clear up on their own like they were supposed to do after a week or two.
[deleted] t1_j8f8wwd wrote
Dr_Ukato t1_j8f8tm2 wrote
Reply to comment by AlternativeSign272 in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
You're a regular Zebra park
(That's a reference to the doctor saying "When you hear hooves, Think Horses not Zebras)
AlternativeSign272 OP t1_j8fdtnc wrote
Reply to comment by SpudTrash in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272
No worries, lol.